Category: Trisomy 18 Journey
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History and Harbor Views Peter walked on water, Moses walked through water, Moses’s mom, well, she had the faith to let her baby go in the water to save him. God said, “when you walk through the waters, I will be there.” Isaiah 43:2 The view from the MUSC Children’s Hospital is the notorious Charleston…
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Rynnie’s Story A mama never wants to hear the worst, but a medical mama surely never does. She knows too much and not enough all at once. In November 2021 our world was shaken when I was opening labs in my inbox, just to stumble upon my own prenatal testing. Like most moms, we…
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For your daily dose of reality check: my half time show was calling 911 for my daughter who was struggling to breathe. Stop. Breathe. Didn’t that feel good. … Let’s take a moment to thank God we can sit upright on the soft, squishy, cushions of our fluffy couches in our safe homes and loud…
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One week in the hospital watching your kid gasp for air, the next we are singing “It is well with my soul” with the brothers and sisters in Christ that are holding our arms up when they are weary. How can it be? How can you sing it is well when your kid is non…
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Fighting pneumonia and clinging to Jesus
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Advent Series: Peace from the manger to the garden
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Having a special needs kid will change your life, and from what I hear, there’s simply no going back. The @NewYorkPost and @New York Times recently did a write up about a family with Trisomy 18, and a mom who is choosing joy, contentment and love over everything else. The way the write-up was written…
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Hey special needs fams, I have been trying to live in the here and now with Joy, with grace despite exhaustion… to trade Bitter for Joy,… Ok Medicaid cuts pending, doom gloom, recent hospital stays for ridiculousness with this dang J tube, comparing our lives to “normal families,” … and bitterness can snake its way…
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The real miracle wasn’t the miracle of the perfectly healed baby, it was the peace I had as I was rolled into the OR to deliver the baby that was told would die.
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I am not sure if I will ever get the version of vacation I dream of. Honestly, that’s one of those, as long as My Angel is earth side, vacation will look “hard” to the naked eye, and often to my eyes. But a hard vacation is better than no vacation, and a vacation with…
A Medical Mama’s Tips, Tricks and Tales 