Category: Trisomy 18 Journey
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Advent Series: Peace from the manger to the garden
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Having a special needs kid will change your life, and from what I hear, there’s simply no going back. The @NewYorkPost and @New York Times recently did a write up about a family with Trisomy 18, and a mom who is choosing joy, contentment and love over everything else. The way the write-up was written…
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Hey special needs fams, I have been trying to live in the here and now with Joy, with grace despite exhaustion… to trade Bitter for Joy,… Ok Medicaid cuts pending, doom gloom, recent hospital stays for ridiculousness with this dang J tube, comparing our lives to “normal families,” … and bitterness can snake its way…
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The real miracle wasn’t the miracle of the perfectly healed baby, it was the peace I had as I was rolled into the OR to deliver the baby that was told would die.
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I am not sure if I will ever get the version of vacation I dream of. Honestly, that’s one of those, as long as My Angel is earth side, vacation will look “hard” to the naked eye, and often to my eyes. But a hard vacation is better than no vacation, and a vacation with…
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10 minutes before she was born: Do you want CPR? We had this talk about five times before, but the day your kid is born, man that’s a hard day to be asked… “Do you want CPR?” “Do you want to intubate?” “There’s a good chance she won’t survive birth.” It’s supposed to be joyful.…
A Medical Mama’s Tips, Tricks and Tales 